Friday, February 13, 2009

Pray for Avery

Our sweet girl is really in need of a break right now. Yesterday was a long, horrible day. She woke up from her nap absolutely hysterical and was inconsolable for several hours. She vomited a few times and then just passed out (as in fainted) and I panicked.

We spent the night in Children's Mercy getting lab work and a CT scan but the doctor's were not able to explain what caused this particular event or tell us what to do to prevent it from happening again. Welcome to life with TSC.

It took seven sticks to get this IV. Our sweet girl is bruised and looks like a pin cushion this morning.

After a head CT scan to rule out changes with her tumors Avery was so out of it from the sedation meds that she kinda forgot to breathe. She struggled to keep her O2 sats up and needed blow by oxygen for a while.

We are home now, with few answers and many questions. Thank you for checking in on our sweet girl and saying a prayer or two for us!

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Sunday, February 8, 2009


My heart aches for this family today.

I have been following Cora's short battle with cancer since Bethany posted about it on her blog. For some reason this precious angel's sweet face and her family's obvious love for her really got under my skin. It just hit a little too close to home even though we are not battling cancer.

Please pray for them and hug your babies a little tighter today. Every day with them is a blessing, not a guarantee.

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